Here are some things to do in NYC
Tuesday, April 9, 2013
Here are some links of things to do in Long Island New York
Here are some links of things to do in Long Island New York
Friday, March 29, 2013
This year's conference will be at:
The Huntington Hilton
598 Broad Hollow Road
Melville, NY, 11747
The hotel’s direct phone number: 1‐631‐845‐1000
Hotel website: http://www3.hilton.com/en/hotels/new-york/hilton-long-island-huntington-ISPHHHF/index.html
The 5p‐ Society has secured a room rate of $159 per night for two double beds or one king bed. The rate is good for three nights before or after the conference. You can make your reservations by calling the hotel’s toll free reservation line at (800) HILTONS, or online. Our group code is FPM. Be sure to indicate that you are with the 5p‐ Society; if you are requesting a room outside of the group rate, please have the hotel put “5p‐ Society” in the “notes” section of the reservation (please note that extended hotel stays must be arranged by phone).
IF YOU HAVE ANY PROBLEMS MAKING YOUR HOTEL RESERVATIONS, PLEASE CONTACT LAURA AT THE 5P‐ SOCIETY, (888) 970‐0777, FOR DIRECT ASSISTANCE.
Thursday, March 28, 2013
5p- Society Annual Conference and Get-Together
July 25-28, 2013, Long Island, New York
Start Spreading the News is not just the opening line of Frank Sinatra’s New York, New York, it is also the theme of this year’s conference and reflects the 5p- Society’s desire to spread awareness and updated information regarding Cri Du Chat. This conference promises to do just that in a packed weekend of events that balances informational workshops, entertainment, and opportunities to just relax with other families that “get it.”
Our conference is being held at the Huntington Hilton in Long Island, NY. It is conveniently located on Route 110 (Broad Hollow Road), which borders the two counties of Long Island (Nassau and Suffolk). This enables us to still be within 30 miles of Manhattan, offer a Family Fun Event at the beach on Long Island and secure a relatively affordable rate of $159 per night. This pet friendly hotel also allows attendees to extend their stay before or after the conference to visit all that NYC has to offer, play some golf on Bethpage State Park’s Black course (home to the 2002 and 2009 US Open tournament), visit Long Island’s East End wineries, take a day trip to the Hamptons or just relax by the hotel pools. The Hilton provides free shuttle service along the Route 110 corridor to restaurants, shops and the Long Island Railroad, but unfortunately, does not provide airport shuttle service. As in past years, attendees may submit conference registration forms online or through the mail. Overnight accommodations must be booked directly thought the hotel by mentioning Group Code: FPM (1-800-HILTONS or http://www3.hilton.com/en/hotels/new-york/hilton-long-island-huntington-ISPHHHF/index.html).
This year’s conference workshops include popular favorites of Behavior Strategies, Financial Planning and iPad Applications for Language Development, while introducing new presenters, workshops topics, and essential skills like CPR Training, a Get Walking workshop with various assistive walkers and a certified orthotist, a communication device workshop with Adelphi University’s SGD lab, and a workshop on reading programs.
We are very happy to announce that Rachel Coleman of Signing Time will be singing and signing for us at this year’s conference. Signing Time is featured on Nick Jr., but has also appeared on PBS and Rachel has performed at various community events like Buddy Walk. Rachel Coleman and her talented family developed Signing Time as a way to help all families communicate through ASL after finding out that her daughter, Leah, was deaf – you can find out more about Rachel and her amazing family at www.rachelcoleman.com. She will be available for a “meet and greet” after the concert.
We could not bring you to Long Island without bringing you to the beach. This year, our Family Fun Event will be at Lido Beach Town Park, on Long Beach. The site was chosen because it is in tandem with Camp Anchor – a special needs camp on Long Island (www.campanchor.org). Although Sandy caused some severe damage to Long Beach (even knocking out the nearby boardwalk), Lido Beach and Camp Anchor’s facilities sustained only minor damage which should be fully repaired by July. The afternoon picnic will be held at “The Mushrooms,” so nick-named because of the large mushroom shaped structures that provide shelter from the sun and rain between the parking lot and the dunes. After lunch, families can choose to stay in the shade, venture over the dunes to the beach or explore all of the other facilities at Lido and Camp Anchor – age appropriate children’s play areas, a baby fountain pool area, volleyball, horseshoe pitching, shuffleboard, bocci, and basketball are all available on site. Sand accessible wheelchairs are even available upon request.
This year’s Sibling Outing will be held at 300 Long Island, a state of the art bowling alley with floor to ceiling video screens. The kids will have their own private bowling room where lunch will be provided. After their outing, the siblings will return to the hotel for an afternoon pool party. In addition to the Sibling Outing, we also have many other activities planned for both siblings and our CdC children. One of the big initiatives this year is a redesign of Childcare – we have created a 5p- Fun Camp complete with age appropriate activities like yoga, dance lessons, scrap-booking and even a photo booth station. Every room will be staffed with adults who are familiar with CdC children and at least one staff member at all times who is competent in ASL. Our goal is to ensure that everyone in the family gets to relax and have some fun.
The culmination of the conference is, of course, our Family Banquet on Saturday night – a chance for everyone to celebrate together. This event will put a smile on your face as we dance the night away with both new and old friends. The Hilton’s attentive wait staff and delicious food will surely complement the entertainment and fellowship. We would like to also note that the Hilton is working with us on possible dietary concerns – please note any special requests on the conference registration form.
For more information about the conference, please visit: www.fivepminus.org/annconfX.htm and join us on facebook at www.facebook.com/events/257824834293106/. We can’t wait for your arrival! Be sure to register soon!
Posted by 5p- Society at Thursday, March 28, 2013